来源：风湿病与关节炎,2024,13（1）:30-35.

强直性脊柱炎患者功能锻炼体验的质性研究（临床研究）

赵　燕，石改绍，徐　伟，贺楠楠，蒋晓旭，樊琳琳

　　【摘　要】目的：探析强直性脊柱炎患者功能锻炼体验及影响因素，为制定提高患者功能锻炼依从性的策略提供参考。方法：采用目的抽样法，选取2020年11月至2021年2月在河南科技大学第一附属医院风湿免疫科就诊的16例强直性脊柱炎患者进行半结构式访谈，采用Colaizzi 7步分析法分析资料。结果：患者在功能锻炼过程中的体验可以归纳为4个主题：①发现诸多益处（改善病情；改良其他不良习惯；增强身体素质）。②心理问题干扰（病耻感；意志力薄弱）。③社会支持不足（家庭支持缺乏；环境支持欠缺）。④存在诸多困惑（疾病不确定感；锻炼效果不确定感；锻炼方法认知不足）。结论：可以加强患者教育，开展同伴教育，给予心理疏导，加强家庭支持，呼吁社会支持，完善设施和场地，从而提高患者的锻炼依从性。

　　【关键词】　强直性脊柱炎；功能锻炼；质性研究；影响因素

A Qualitative Study on the Functional Exercise Experience of Patients with Ankylosing Spondylitis

ZHAO Yan,SHI Gai-shao,XU Wei,HE Nan-nan,JIANG Xiao-xu,FAN Lin-lin

　　【ABSTRACT】Objective:To explore the functional exercise experience and influencing factors of patients with ankylosing spondylitis,and provide reference for formulating strategies to improve patient compliance with functional exercise.Methods:A purposive sampling method was used to select 16 patients with ankylosing spondylitis who visited the First Affiliated Hospital of Henan University of Science and Technology from November 2020 to February 2021 for semi-structured interviews.The data were analyzed using Colaizzi's 7-step analysis method.Results:The patient’s experience during functional exercise could be summarized into four themes:①Discovering many benefits（improving the condition;improving other bad habits;enhancing physical fitness）;②Psychological problems interference（a sense of shame;weak willpower）;③Lack of social support（lack of family support;lack of environmental support）;④Many confusions（uncertainty about illness;uncertainty about exercise effectiveness;insufficient understanding of exercise methods）.Conclusion:Patient exercise compliance can be improved by strengthening patient education,carrying out peer education,providing psychological counseling,strengthening family support,calling for social support and improving facilities and venues.

　　【Keywords】 ankylosing spondylitis;functional exercise;qualitative research;influence factor